Comments on: Some people are so rude

By: Charlotte

Charlotte — Thu, 01 Jan 2009 22:59:57 +0000

I just wanted to post to tell you that i am really glad that i stumbled over your post, my 6month old baby boy (Jaiden Bailey) also has end stage renal failure and is on peritoneal dialysis and has been for the past 5 months.
He is continuosly fed through his nasal gastric tube and i am forever having to put up with people staring and making comments like the one you have posted. Some people are so ignorant and naieve it drives me crazy.

Sometimes i feel so alone and like no one can understand what we are going through, the endless beeping of the dialysis machine and having to insert the nasal tube everyday because Jaiden pulls it out, the medication, dressing change, injection etc etc.

I’m sure no one could appreciate these things more than yourselves. Your daughter is absolutely beautiful.

We are just aiming for that 10kg, i never thought i would be excited about every pound my baby puts on, but i certainly appreciate everything a whole lot more now,

Jaiden is a evelina childrens hospital patient, so its interesting to see if GOSH do things differently.

Take care, i look forward to reading jasmines updates.

By: Jill Winslow

Jill Winslow — Wed, 19 Nov 2008 20:16:24 +0000

wonders never cease right (: I always replied to “what is wrong with him” with a nice big smile since I always had both kids in tow and said “nothing, what is wrong with you” Sometimes, its a little too much, the disapproving stares and all, but stuff it, you’re fab, Jas is fab and you’re all amazing! hugs, Jill

By: Nicola

Nicola — Wed, 19 Nov 2008 17:35:16 +0000

“In her tiny mind: NG tube = child abuse.” The operative words there are definitely: tiny mind. Speechless was the way to go; it’s not worth wasting your breath on people like that.

Such a lovely picture of your beautiful girl today…