Neil: Sleepy babies

The girls in their dressing gowns

We had a busy day down at clinics today. When we got back there was a parcel with two lovely dressing gowns for the girls (thank you Sarah!). We gave them both a bath and got them ready for bed. They both look really tired as they had both kept us awake last night as well.

We saw the transplant surgeon who explained what is going on with the kidney dilatation. He said that the dilatation was very mild and not to worry as they will keep looking at the creatinine level, and send us for ultrasounds every three months to check that everything is stable.

Her x-ray on her hips was fine, so that is good. Hopefully she will hop up and start walking soon.

Jasmine has developed a rash on her face. We don’t know whether it is an allergy, or something else. We got some cream for it from the chemist. Jasmine had also recently started a new shampoo, so we have changed back to the old shampoo, in case that had anything to do with it. The other day she tipped her water bottle down herself while we were outside in the freezing weather.

Jasmine’s blood levels required some tinkering too. We are going to give the Magnesium twice a day rather than three times. Her Tacrolimus level is now a bit high, so we are going to give 7 mls in the morning and 8 mls in the evening. Her iron is also a bit low, so she is back on Sytron. I thought that we had seen the last of the Sytron, so had taken the old used bottles back to the chemist. We went to the pharmacy to drop off a new prescription and had to come back in an hour, so we went to get a sandwich, croissant and coffee for lunch.

Yesterday we all went to the dentist. It took mere seconds to check that Calista’s two teeth were in order. It was more difficult to check Jasmine, as she would not open her mouth, and had to be bribed with stickers. Jasmine’s teeth look fine, which is good news. With Jasmine vomiting twenty times a day for 18 months the dentist said she might have had rotten teeth from the stomach acid, like bulimics. Ruth and I both needed fillings – yuk!

2 Responses to “Neil: Sleepy babies”

  1. Barbara Seacombe says:

    Happy Birthday Jasmine,
    Bigs Hugs to everyone from Minehead.
    Thinking of the family

  2. Andrea says:

    Happy 2nd Birthday Jasmine. Sorry Ruth I have lost addrsss Could you text me it please

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