Care in the community

Jasmine and I left the house this morning at 11am to go and see our lovely doctor. She was supportive as always with lots of practical advice, unlike the community nurse who keeps coming round and telling me that I am going to get very tired, down, and depressed and need respite care. She says it like a mantra. When I imagine her saying it, I always picture her rubbing her hands together with glee. The reason she was so late last week was that she was sitting in her office typing a letter. Such is life!

Today, Neil and I asked for training on how to give Jasmine her weekly injection. We start training this week.

After the doctors, Jasmine and I went to the V&A. It was lovely and relaxing. The first time in days I felt free and away from it all. It didn’t last long, another community nurse rang up, followed by the community dietician, and then later another nurse. Eventually, I had had enough and told them that yes, I do feel tired, down and depressed and need respite: from them.

Jasmine loved the Robert Adam section as it was full of red and gold. She also loved the cafe downstairs with the big balls of fairy lights. She stared at them for ages and got lots of compliments from passerbys, including the Les Dawson Cissie and Ada ladies on the next table who thought I couldn’t hear them when they were saying in a stage whisper: “Look at that tube in her nose, she must be really ill, poor little mite” and pointing at their noses.

I feel very tired tonight. All this care and attention is exhausting. Jasmine only had a couple of small vomits in the night last night and then this morning a little mucus vomit and has been fine all day. I am thrilled. We have been tinkering with her feeds in the night and during the day to hit on a balance that she gets her full calorie/fluid total but doesn’t vomit it up because it is just too much for her. I spent a lot of yesterday with a calculator trying to figure out optimum mls per hour over 24 hours. So we will just see how we get on, renal babies vomit a lot so today’s result is spectacular.

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