Neil: Bottle feeding

Neil feeding Jasmine

Jasmine was bottle feeding today, but it is a bit of shock for her. She managed 10 mls from Ruth and later on I fed her 30 mls, which she promptly sicked up again. The nurses are trying to train Jasmine up to feel hungry, as she has been feeding continuously through the tube in her nose so far. She is back to 2.9 kilos, so her fluid is back down and she looks much less puffy.

While we were cuddling her we managed to knock off one of her nephrostomy bags. Luckily it was the left one, which doesn’t work, so Ruth just got a little “kidney sweat” on her jeans. The surgeon came in and decided that the left kidney has been given enough time and is completely non-functioning, so he removed the catheter by snipping the stitches and unwinding the pig tail catheter. The skin under the dressing was sore, so it was good to clean that and put on a fresh dressing. We had been hoping for a miraculous recovery from that kidney, so it is a shame to give up on it.

Today one of the doctors explained the procedure to insert the catheter ready to start peritoneal dialysis. This is difficult to do in babies as small as Jasmine, and there are lots of potential complications. Jasmine has been through a lot already, but she is a strong little baby. She will probably be going in for surgery tomorrow afternoon.

She had her cannula moved from her foot to her hand. She had so many bandages around her hand that we couldn’t get her gown on or off.

Leave a Reply